Cancer Registration is an ongoing systematic collection of data on identified parameters for determining the magnitude and burden of cancer, occurrence of new cases, assessing long term changes in trend and determining the clinical parameters of various cancers. NCRP commenced as a long term activity of Indian Council of Medical Research (ICMR) with a network of cancer registries across the country in December 1981.

Three Population Based Cancer Registries (PBCR) at Bangalore, Chennai and Mumbai started functioning since January 1982.Three Hospital Based Cancer Registries (HBCR) were initiated in the same year.

PBCRs systematically collect data on all new cases of cancer occurring in a well defined population from multiple sources of registrations (SoR) such as Government Hospitals, Private Hospitals, Nursing Homes, Clinics, Diagnostic Labs, Imaging centres, Hospices and Registrars of Births & Deaths.

HBCRs are concerned with recording of information on cancer patients seen in a particular hospital irrespective of the residential status of the patient. The data collected under HBCRs also contribute to respective PBCRs falling within the same region.

The number of population and hospital based cancer registries have gradually grown and now there are 33 PBCRs and 101 HBCRs in the NCRP network. The data collected by the registries undergo rigorous checks for its quality, duplicates and completeness before being published.

The data generated by NCRP has provided lead to the erstwhile National Cancer Control Programme (NCCP) of the Department of Health and Family Welfare under Ministry of Health and Family Welfare (MOHFW), Govt of India. Now the National Programme for Prevention and Control of Cancer, Diabetes, Cardiovascular Disease and Stroke (NPCDCS) benefits from the data of NCRP. NCRP provides a direction to the cancer control programme in the states for planning and prevention program, establishing treatment facilities, allocating resources and assessing the impact of specific activities such as screening, awareness generation etc. Hospitals benefit by using the registry data for improving their practices and services.

Usage

The data visualization has been provided to obtain a quick overview of cancer incidence on types of cancer which reflects the leading sites of cancers nationwide. The statistical summaries provided indicate the magnitude and patterns of cancers in the registry areas in the form of tables and graphs based on the selection done by the users. It is understood that this visualization would be widely used by public health administrators to plan cancer control activities, researchers to evolve epidemiological studies and clinicians for planning cancer treatment strategies in a better way. This tool will serve to sensitize the policy makers, cancer care organizations, the public, media, as well as the research community.

Data

The maps with the network of NCRP (PBCR and HBCR) show the point of presence of these registries.

Cancer Statistics provides a snippet of information on each registry.

Online Analysis provides reliable figures on magnitude and patterns of all types of cancer at a national level from 27 PBCRs. These are contemporary figures on mainly cancer incidence (new cases occurring in population) based on the data collected by these registries for the years 2012-14. The data pertains to all age groups and both genders.

Features:

1. The visualized data are based on actual data collection in registry areas. The dataset will be periodically updated.

2. The data visualized is based on the ‘Three-year Report of the PBCRs and HBCRs: 2012-2014, Bengaluru, 2016 available on www.ncdirindia.org

3. The data has undergone several quality checks at the time of entry as well as prior to analysis and conforms international norms.

4. Consolidated data from 27 PBCRs covers close to 10% of Indian population with more than 1000 sources of registrations contributing to data. The SoRs are continuously increasing in number with opening of new diagnostic centers and cancer treatment hospitals. The data quality and coverage is undergoing rapid changes in registry areas. Efforts are made to keep the data quality and coverage updated.

Population used as baseline

The growth rate of the population between the census years 2001 and 2011 has been used (through the Difference Distribution Method of Takiar, 2009) to estimate the mid-year populations (five year age group and total) for the years of the report, viz., 2012 to 2014. Factors such as, net migration, birth rate and death rate have not been considered.

The same has been followed for 25 PBCRs, except for Kamrup Urban and Nagaland PBCRs.

The growth rate of the population between the census years 1991 and 2001 has been used to estimate the mid-year populations (five year age group and total) for the years of the report, viz., 2012 to 2014 for Kamrup Urban PBCR, because of certain concerns in population enumeration in north-eastern states by the Census of India.

The population for Nagaland PBCR (Kohima and Dimapur) has been estimated using 1991 and 2011 census to get the mid-year population of 2012 to 2014, as the 2011 census was not accepted by Government of Nagaland.

Dashboard

For selected PBCRs and HBCRs it depicts the pattern of leading sites of cancers since 1980s. For the PBCRs alone, the Age Adjusted Incidence Rates of and trends of all sites of cancers in selected PBCRs and the distribution of cancers associated with the use of tobacco is also shown.