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NCDIR Events

Glimpses of the year 2018 | 2017 | 2016


Brainstorming meeting for “Common Review of Multicentric Research by Ethics Committees” on 10 May 2018 at NCDIR, Bengaluru.
ICMR Bioethics Unit holds Brainstorming on Common Ethics Review for multicentric research: 1st time initiative to streamline, facilitate, expedite and improve conduct of Multicentre Research in India. The National experts developed the draft guidance & Standard Operating Procedures(SOP) for common ethics review of multicentre research which is a big step for harmonizing EC coordination, networking and will help to improve quality, credibility, save time and duplication.

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Workshop cum meeting with sources of Cancer Registration for Delhi PBCR on 2nd May 2018 at AIIMS, New Delhi
A workshop on “Cancer Registry Working” was organized at JLN Auditorium, All India Institute of Medical Sciences on 2nd May 2018 by ICMR, National Centre for Disease Informatics and Research. Major sources of registration contributing data to Population Based Cancer Registry, Delhi actively participated in the meeting. The main agenda was to strengthen the cancer registration system in Delhi qualitatively and quantitatively. A total of 94 delegates registered and 85 delegates participated in workshop. Also discussed regarding guidelines and process of initiating a HBCR with delegates.

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Swachtha and Health awareness event at GPS, Poojanhalli, and drawing competition on 6th April 2018
As part of Swachhta Pakhwada program from 1st to 15th April 2018 by ICMR-NCDIR, Bengaluru, a health awareness event was held at Government Primary School, Poojanahalli including Anganwadi School, Poojanahalli, on 6th April 2018. Around 35 students participated in the drawing competition conducted on Cleanliness and Health awareness..

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Workshop on Population Based Cancer Registry on 26 March 2018 at NCDIR, Bengaluru
A workshop on cancer registration was held at NCDIR, Bengaluru on 26th March 2016 to train the investigators and registry staff of 4 new Population Based Cancer Registries, Allahabad, PBCR covering Gautam Budh Nagar from Uttar Pradesh, PBCR from Assam covering three districts (Karimganj, Hailakandi and Dima Hasao) of Barak valley region in the state and Malabar PBCR covering three districts in southern India namely, Kasargod and Kannur districts of Kerala and Mahe district of Pondicherry. The participants received training in medical terminologies, ICD10 coding, data abstraction, data processing for duplicates and matches using software, data quality indices and data evaluation standards using simple and interactive sessions.

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Training Workshop for staff of Hospital Based Cancer Registry in Regional Cancer Centres on 21st – 22nd March 2018 at NCDIR, Bengaluru.
A workshop for staff employed under the above project held on 21st – 22nd March 2018 at NCDIR-NCRP. The training was provided to the project staff which included Research Scientist (Medical), Statisticians and Social Investigators. The training focussed on cancer registration, cancer terminologies and coding as per ICD-O-3 and methods of data collection including hands on exercises. Participants actively involved in all the interactions. The software team explained, clarified the common data entry errors & doubts by software demonstration.

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Training Workshop for staff of centers of Hospital Based Cancer Registry Data management (HBCRDM) and Hospital Based Cancer Registry in Sources of Registration (HBCR in SORs) on 19th - 20th March 2018 at NCDIR, Bengaluru
A workshop with staff employed under the above projects has been held on 19th -20th March 2018 at NCDIR-NCRP. The newly joined staff which included Social Investigators, Data Entry Operators and Statisticians were for the first time briefed about cancer registration, cancer terminologies and coding as per ICDO-3 and methods of data collection under the National Cancer Registry Programme. Various hands on exercises were given and software entry demonstrations were held.

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Meeting of Setting up of Hospital Based Cancer Registries in Regional Cancer Centres on 16 March 2018 at NCDIR, Bengaluru.
A meeting with Principal Investigators of Hospital Based Cancer Registries has been held on 16th March 2018 to have a discourse on challenges of collection of data of in Regional Cancer Centers. The quality of data received, methods of collection of data from all departments and administrative & financial issues faced were discussed at length during the workshop. HBCRs help in assessing cancer patient care in a given hospital and aid in hospital administration including the individual hospital’s cancer control programmes. HBCRs also collect information pertaining to clinical stage, treatment and follow-up. Hospital registries help in planning and monitoring survival studies and clinical trials. In many instances, hospital registries contribute cases to the Population Based Cancer Registry in the area.

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Meeting on ‘Strengthening Cause of Death Information using NCDIR e-Mor in North East India’ on March 15th 2018 at NCDIR, Bengaluru.
ICMR-NCDIR, Bengaluru conducted the meeting to sensitize the need for strengthening the mortality statistics in North East India. The meeting was attended by the Heads of the Institutions, Investigators of Population Based Cancer Registries in North East India and officials of the Registrar of Births and Deaths from the states in North East India. Highlights of the NCDIR e-Mor software and the need for strengthening the mortality statistics in North East India was described. Challenges and future plan to implement e-Mor in the respective hospitals was discussed. PIs of PBCRs from other parts of India also shared their views and practices.

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Workshop on “Population Based Cancer Survival on Cancers of Breast, Cervix and Head & Neck” on 14th March 2018 (afternoon) to 15th March (forenoon) March 2018
Workshop on Population Based Cancer Survival on Cancers of Breast, Cervix and Head & Neck was conducted in ICMR - NCDIR, Bengaluru on 14-15, March 2018. Experts in the field of cancer survival, epidemiologists and Investigators from the registries participated along with NCDIR staff. The workshop discussed the modalities of data collection, methodology, follow up proforma and registry specific issues.

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Workshop on Population Based Stroke Registry (PBSR), 2018 on 13th and 14th March 2018 at NCDIR, Bengaluru.
A two-day workshop was organized for the PBSR centres at the ICMR – National Centre for Disease Informatics and Research, Bengaluru on 13th and 14th March 2018. Investigators from the PBSR centres (Varanasi, Kota, Silchar, Cuttack and Tirunelveli) attended the workshop. Concepts and definitions of PBSR, population coverage and methods of case abstraction were discussed. Hands-on training session was provided on the software application for data entry with inbuilt quality checks. The progress of work was reviewed and future implementation plan by each registry was discussed.

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ICMR- Symposium on Draft New Drugs and Clinical Trials Rules, 2018 on 12th March 2018 at NCDIR, Bengaluru.
ICMR-Bioethics Unit, NCDIR, Bengaluru organized a symposium to discuss the Draft New Drugs and Clinical Trial Rules 2018 at NCDIR, Bangalore on 12th March, 2018. The symposium was chaired by Prof Madhava Menon, Chairperson, Central Ethics Committee on Human Research and was attended by stakeholders from other government agencies, universities, research institutes, non- governmental organizations, private practitioners, legal experts, basic scientists, social scientists and others. Feedback and comments will be communicated to Central Drug Standards and Control Organization (CDSCO).

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Release of the document "Definition of terms used in limitation of treatment and providing palliative care at end of life” at NCDIR, Bengaluru on 12th March 2018 as the Hon’ble Supreme Court Issues Directive.
A document which defines complex terminologies of End of Life Care (EOLC), in consonance with the recent Hon’ble Supreme Court directives on passive euthanasia has been released at ICMR - NCDIR, Bengaluru by the eminent experts in the field.

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ICMR National Ethical Guidelines Dissemination Program held at Gauhati Medical College, Guwahati on 8th March, 2018
ICMR Bioethics Unit, National Centre for Disease Informatics and Research, Bangalore, and Central Development Services Agency (CDSA), THSTI jointly organized a Dissemination programme on the revised ‘National Ethical Guidelines for Biomedical and Health Research Involving Human Participants, 2017’, and ‘National Ethical Guidelines for Biomedical Research Involving Children’ in collaboration with Gauhati Medical College, Guwahati. Approximately 700 participants from various Medical, Dental, Paramedical, Nursing, Pharmacy colleges and other research institutes of Assam and other neighbouring States attended the program. There were interactive discussions during the panel discussion with the expert members.

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Sensitization Workshop on Hospital Based Cancer Registry in Sources of Registrations of already existing Population Based Cancer Registries (PBCRs) at Bengaluru, Chennai, Delhi, Mumbai and Kolkata held on 8th March 2018 at NCDIR (ICMR), Bengaluru.
The workshop has been conducted to sensitize the Principal Investigators (PI) and Co-PIs to understand the cancer registration process to help in smooth functioning of Hospital Based Cancer Registry (HBCR) at their hospitals as well as contribution to the PBCR. The training was focused on HBCR registration and abstraction of information on cancer patients from all departments of the hospital. Quality checks on treatment, clinical staging, finding the primary site of tumour to minimize the % of unknown and unspecified cancer sites etc. were discussed. HBCRDM software was also demonstrated during the workshop.

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Dissemination of ICMR National Ethical Guidelines 2017 at Amrita Institute of Medical Sciences(AIMS), Kochi on 22 February 2018
ICMR Bioethics Unit, National Centre for Disease Informatics and Research, Bangalore, and Central Development Services Agency (CDSA), THSTI jointly organized a Dissemination programme on the revised ‘National Ethical Guidelines for Biomedical and Health Research Involving Human Participants, 2017’, and ‘National Ethical Guidelines for Biomedical Research Involving Children’ in in collaboration with Amrita Institute of Medical Sciences, Kochi. About 900 participants from various Medical, Dental, Paramedical, Nursing, Pharmacy colleges and other research institutes in Kerala and other neighbouring States registered for the program. There were interactive discussions during the panel discussion with eminent faculty members.

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Data analysis workshop and meeting on review of studies and available data to develop a suitable method for estimating 24 hour dietary sodium intake from spot urinary sample from 19th to 22nd February 2018
Data analysis workshop was held from 19th to 21st February, 2018 at NCDIR, Bengaluru to discuss the logic and syntax for data analysis regarding National NCD Monitoring Survey. The NNMS factsheet was finalised and another workshop will be planned to finalise the draft tables for the final report. A meeting was held on 22nd February 2018, to discuss review of studies and available data to develop a suitable method for estimating 24 hour dietary sodium intake from spot urinary samples. It was decided to perform a systematic review and pooled analysis of the available studies to identify the best equation for estimating 24 hrs dietary sodium intake from spot urinary samples.

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ICMR National Ethical Guidelines Dissemination Program held at AIIMS Bhubaneswar on 17th February 2018
ICMR Bioethics Unit, National Centre for Disease Informatics and Research, Bengaluru, organized a Dissemination programme in collaboration with All India Institute of Medical Sciences, Bhubaneswar and Regional Medical Research Centre, Bhubaneswar, on the revised ‘National Ethical Guidelines for Biomedical and Health Research Involving Human Participants, 2017’, and ‘National Ethical Guidelines for Biomedical Research Involving Children’ at AIIMS, Bhubaneswar. About 814 participants from various Medical, Dental, Paramedical, Nursing, Pharmacy colleges and other research institutes in Odisha, Jharkhand, Chhattisgarh and other neighbouring regions registered for the program. There were interactive discussions during panel discussion.

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Scientific Advisory Committee Meeting on 13 February 2018
Fourth meeting of the Scientific Advisory Committee of NCDIR was held on 13th February 2018 at NCDIR, Bengaluru. Members of the committee along with officials from ICMR Hqs, experts from National Centre for Disease Control (NCDC), National Informatics Centre from the Department of Electronics and Information Technology, Ministry of Communications & Information Technology and the NCDIR staff participated in the meeting.

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ICMR National Ethical Guidelines Dissemination Program held at Sri Ramachandra Medical College and Research Institute, Porur, Chennai on 7th February 2018
ICMR Bioethics Unit, National Centre for Disease Informatics and Research, Bangalore, organized a Dissemination programme in collaboration with National Institute for Research in Tuberculosis, Chennai and SRMC, Chennai on the revised ‘National Ethical Guidelines for Biomedical and Health Research Involving Human Participants, 2017’, ‘National Ethical Guidelines for Biomedical Research Involving Children’ and ‘National Guidelines for Stem Cell Research’ at University Auditorium, SRMC & RI, Porur, Chennai. More than 1100 participants from various Medical, Dental, Paramedical, Nursing, Pharmacy colleges and other research institutes in Tamil Nadu, Andhra Pradesh, Telangana, Karnataka, Pondicherry and other neighbouring regions attended the program and benefitted from the interactive discussions and gained newer updates on the topic.

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Meeting on Proforma and Protocol Development for the project, Population Based Cancer Survival on Cancers of Breast, Cervix and Head & Neck on 24th January, 2018
A one day meeting on Proforma and Protocol Development for the project, Population Based Cancer Survival on Cancers of Breast, Cervix and Head & Neck has been conducted in ICMR - NCDIR, Bengaluru on 24th January, 2018. Experts in the field of cancer survival and epidemiologists participated along with NCDIR staff. This meeting was focused on developing the study protocol and follow-up proforma.

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Sensitization Workshop for HBCRs in Sources of Registration of already existing PBCRs at Bengaluru, Chennai, Delhi, Mumbai and Kolkata on 19 January 2018 at NCDIR, Bengaluru
The workshop has been conducted to sensitize the Principal Investigators(PI) and Co-PIs to understand the cancer registration process which will help in smooth functioning of Hospital Based Cancer Registry (HBCR) at their hospitals as well as contribution to the PBCR. Investigators from 13 HBCRs across the country participated in the workshop. The training was focused on HBCR registration setup, abstraction of information on cancer patients from all departments of the hospital. Quality checks on treatment, clinical staging, finding the primary site of tumour and reducing the unknown and unspecified cancer sites etc. was discussed. HBCRDM software was also demonstrated during the workshop.

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Workshop on "Research Ethics and Good Clinical Practice (GCP)- Current Scenario" held at National JALMA Institute for Leprosy and other Micobacterial Diseases, Agra from 15th to 16th January, 2018
A two day workshop was organized at the ICMR Institute - National JALMA Institute for Leprosy and other Micobacterial Diseases, Agra on 15th and 16th January 2018. Participants from the various Medical colleges and other research institutes from nearby region including the ICMR-Regional Medical Research Centre, Gorakhpur participated in the workshop.

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Sensitization Workshop for Hospital Based Cancer Registries Data Management Centres on 12th January 2018 at NCDIR.
The workshop has been conducted to sensitize the Principal Investigators(PI) and Co-PIs to understand the cancer registration process which will help in smooth functioning of Hospital Based Cancer Registry (HBCR) at their hospitals. Investigators from 19 HBCRs across the country participated in the workshop. The training was focused on HBCR registration setup, collection of information on cancer patients from all departments of the hospital, completing parameters on treatment, clinical staging, finding the primary site of tumour and reducing the unknown and unspecified cancer sites etc. HBCRDM software was also demonstrated during the workshop.

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Workshop on Proforma Development for Pattern of Care and Survival Studies (POCSS) on Gynaecological Malignancies (except cervix) under NCRP –NCDIR on 11th January 2018.
A one day Workshop on Proforma Development for Pattern of Care and Survival Studies (POCSS) on Gynecological Malignancies (except Cervix) has been conducted in ICMR- NCDIR, Bengaluru on 11th January 2018. Clinical experts in the fields of Gynecological oncology and Radiation Oncology from various national institutes participated in the brainstorming workshop. The discussions provide a direction to develop the programme as per clinician`s requirement of evidence and also in a pragmatic approach.

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Workshop on Proforma Development for Pattern of Care and Survival Studies (POCSS) on Childhood and Adult Haematolymphoid Malignancies under NCRP –NCDIR on 10th January 2018.
A one day Workshop on Proforma Development for Pattern of Care and Survival Studies (POCSS) on Childhood and Adult Haematolymphoid Malignancies has been conducted in ICMR - NCDIR, Bengluru on 10th January 2018. Clinical experts in the fields of Paediatric and Adult Haematolymphoid oncology from various national institutes participated in the brainstorming workshop. The discussions provide a direction to develop the programme as per clinician`s requirement of evidence and also in a pragmatic approach.

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Workshop on Research Ethics and Good Clinical Practice held at NICPR, Noida on 9th January 2018
ICMR Bioethics Unit, NCDIR and NICPR, Noida jointly organized a one day training on Research Ethics and Good Clinical Practice for researchers and ethics committee from several research institutes and medical colleges in Delhi and Noida at NICPR, Noida on 9th January 2018.

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New Year Day Interaction with staff


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